Emily Kramer-Golinkoff

Bio

Emily Kramer-Golinkoff is a nationally recognized advocate, speaker, and thought leader in the cystic fibrosis community. Diagnosed with CF at just six weeks old, she is the founder of Emily’s Entourage, a groundbreaking nonprofit accelerating research and drug development for people with rare nonsense mutations of CF. Emily has transformed her personal journey into a global movement, raising millions for research and building partnerships across the scientific community. Her work demonstrates the transformative impact of advocacy, community building, and unyielding hope. Emily’s story is a testament to what is possible when passion and purpose unite for change.