Navigating the Complexities of the Healthcare System
In this episode of Our Fight to Breathe Podcast, host Caleigh Haber Takayama sits down with Aaron Stocks, Senior Manager of Case Management and Operations at the Cystic Fibrosis Foundation's COMPASS program. Aaron brings a unique dual perspective—he both lives with cystic fibrosis and professionally helps others navigate the complex healthcare system. His journey from receiving an unexpected $700 medical bill that led to collections sparked his passion for healthcare advocacy and insurance literacy.
This conversation addresses one of the most critical yet overwhelming aspects of living with chronic illness: understanding and managing healthcare insurance. Aaron shares practical strategies for avoiding surprise medical bills, selecting appropriate insurance plans, and accessing essential specialized care. The discussion emphasizes the importance of preparation, understanding your specific healthcare needs, and knowing how to advocate effectively within the system.
Key topics covered:
- Essential preparation steps before choosing an insurance plan
- How to avoid unexpected medical bills and understand billing codes
- Strategies for ensuring your CF care team and medications are covered
- Resources available through the COMPASS program for personalized support
- State-based programs and financial assistance options
- The importance of building healthcare independence as a young adult
Whether you're transitioning to managing your own healthcare, helping a family member navigate insurance decisions, or simply trying to better understand the system, this episode provides actionable insights and resources. Aaron's personal experience combined with his professional expertise offers hope that with the right knowledge and support, healthcare navigation becomes more manageable.
This podcast provides educational information and should not replace professional medical or insurance advice.
Creators and Guests
Host
Caleigh Haber-Takayama
I'm Caleigh Haber, a cystic fibrosis warrior, two-time double lung transplant recipient, and passionate advocate for the chronic illness community. Born with CF, I've navigated countless surgeries and medical challenges while choosing to live each day to the fullest in honor of my donors and with deep gratitude for my supportive community. Through Fight2Breathe and my podcast "Our Fight to Breathe," I advocate for the cystic fibrosis, organ transplant, and rare disease communities, working to raise awareness and inspire others to thrive despite their challenges.
Guest
Aaron Stocks
Aaron Stocks is the Senior Manager of Case Management and Operations at the Cystic Fibrosis Foundation’s Compass program. Diagnosed with cystic fibrosis at just six weeks old, he spent his first year of life in the hospital, shaping his deep understanding of the healthcare system. Aaron’s personal journey with CF inspired his passion for helping others, leading him to support individuals and families navigating complex insurance and healthcare challenges. Through his work with Compass, he empowers the CF community with resources, advocacy strategies, and personalized assistance to ensure access to essential care. His blend of lived experience and professional expertise makes him a trusted advocate and leader in the field.